As a group, they can get through long conferences together by, for example, walking at the pace of the slowest member. Psychic difference and neurodivergence also mean that we may be blunt, depressed, or hard to deal with by the tenants of an ableist world., I realize how much I have wanted this and not gotten it [good love], realize how much it is branded in my heart that, to be happy, alone, and childless is a fucking gift that most women get brainwashed into relinquishing., Recently, Stacey Milbern brought up the concept of crip doulasother disabled people who help bring you into disability community or into a different kind of disability than you may have experienced before. Today. 9781551527390. And we were learning from the Civil Rights Movement and from the Women's Rights Movement. There is a fight to stay relevant and reach people with your art because if people know your work, youll get work, and your work might reach folks. COLLECTIVE ACCESS As brown, black and queer-bodied disabled people we bring flexibility and creative nuance that go beyond able-bodied/minded normativity, to be in community with each other. By far the most life-changing, mind-blowing, paradigm-shifting book Ive read in years-perhaps ever. Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha is a collection of essays from the award-winning writer, performance artist, and longtime disability justice. ANTI-CAPITALIST POLITIC In an economy that sees land and humans as components of profit, we are anti-capitalist by the nature of having non-conforming body/minds. Disabled Mizrahi genderqueer writer and organizer Billie Rain started Sick and Disabled Queers (SDQ), a Facebook group for well, sick, and disabled queers, in 2010 (60). Significantly, Piepzna-Samarasinha reminds us that everyone needs and deserves care regardless of how likeable or networked we are (132). Loree Erickson, the fourth Ethel Louise Armstrong (ELA) Foundation postdoctoral fellowship recipient in the School of Disability Studies, is focused on several areas of research, including collective care initiatives and cultures of undesirability. Photo: Alia Youssef. Please note: Selecting permissions does not provide access to the full text of the article, please see our help page The list below is a non-exhaustive list: Take yin chiao at the first sign of an illness to reduce your chances of getting sick; Gargle hot sea salt when you feel a cough coming; Melatonin or Benadryl to help you sleep when you need to; Activated charcoal to help prevent throwing up; Mason jar with half a lemon then fill with water to get electrolytes and hydration. Leah Lakshmi Piepzna-Samrasinha is the author of Care Work: Dreaming Disability Justice, Dirty River: A Queer Femme of Color Dreaming Her Way Home (short-listed for the Lambda and Publishing Triangle Awards), Bodymap, Love Cake (Lambda Literary Award winner) and co-editor of The Revolution Starts At Home: Confronting Intimate Violence in . Instead, if we were too sick or disabled to work, we were often killed, sold, or left to die, because we were not making factory or plantation owners money. Insightful read on disability justice, and how we need to transform spaces, institutions, mindsets as well as policies and laws. Picture Information. Published: 12/24/2019 Genre: Social Science - Handicapped. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Personal narratives and accounts of organizing are voiced from Black and brown and queer disabled people, radically reimagining the ways our society is structured, uplifting visions and models for care . Not a whole lot., Wed love your help. Press-published writing on Disability Justice is only beginning to emerge, marking Care Work a crucial kind of historical archive. Piepzna-Samarasinha has lived experiences in care webs and helping people through different crises. En stock. %PDF-1.6 % Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha. Disability justice means people with disabilities taking leadership positions, and everything that means when we show up as our whole selves, including thrown-out backs or broken wheelchairs making every day a work-from-home day, having a panic attack at the rally, or needing to empty an ostomy bag in the middle of a meeting. ALICE: Hey, Leah. By closing this message, you are consenting to our use of cookies. Her writing and performance art focuses on documenting the stories of queer and trans people of color, abuse survivors, mixed-race people and diasporic South Asians and Sri Lankans. As Leah writes in Care Work: Disability justice is to the disability rights movement what the environmental justice movement is to the mainstream environmental movement. I also really enjoyed the histories and stories of the early Disability Justice movement, the thoughts on chronic illness and creativity, and on care webs and mutual aid for disabled people designed by disabled people. "Care Work" is composed of Piepzna-Samarasinha's disability justice dreams, from care webs to accessibility "as a collective joy and offering we can give to each other." But Piepzna-Samarasinha also recognizes the grief inherent in a communal dreaming practice. There were difficulties with this model because not every disabled person in the group advocated for the help needed. I was learning as my friends were, and people I didn't know around the country, that we had to be our own advocates, that we needed to fight back people's view that if you had a disability, you needed to be cured, that equality was not part of the equation. The artist/facilitator is present to elicit these dreams and to reflect back the open presence of the community. Synopsis. Not alliances based on words and letters., Mainstream ideas of healing deeply believe in ableist ideas that youre either sick or well, fixed or broken, and that nobody would want to be in a disabled or sick or mad bodymind. A study guide of Leah Lakshmi Piepzna-Samarasinhas 2018 book Care Work: Dreaming Disability Justice.. As a queer disabled afab person there was so much I related to, I swear it helped heal something inside of me, and as a white person there is so much that I learned from. Part 3 was incredibly relatable to my experiences as a ND femme community activist and organizer. SUSTAINABILITY We pace ourselves, individually and collectively, to be sustained long term. For example, transformative justice workstrategies that create justice, healing, and safety for survivors of abuse without predominantly relying on the stateis hard as hell! Ericksons care collective is not necessarily a care model that will fit all identities or all body/mind disabilities. Historically, the disabled were killed under colonialism and capitalism, and this has led to lasting shame within some marginalized communities. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. a book i knew would completely alter my life before i was even close to finishing it. Vancouver: arsenal pulp press, 2018. It is slow. Edie thinks she has her disability under control until she meets her match with a French 102 course and a professor unwilling to help her out. Each essay hit me differently and I feel like this wasn't the most gender binary variant inclusive text for being written by someone who is part of the queer community. Social Sciences. When she had previously hired a caregiver, Ericksons sexual identity was not respected, and she experienced homophobia from her caregivers. Ableism means that wewith our panic attacks, our trauma, our triggers, our nagging need for fat seating or wheelchair access, our crankiness at inaccessibility, again, our staying homeare seen as pains in the ass, not particularly cool or sexy or interesting. Creating Collective Access (CCA) was a crip-femme-of color-made initiative dedicated to making sure a Detroit conference was accessible. For the zoom information and more, contact info@disabilityjusticedreaming.org, Meets: Second Monday of the Month, 5-6:30 p.m. PDT(GMT-7), Our working Board is a gentle space that honors the needs of Board Members bodyminds while also both governing and managing Disability Justice Dreaming.*. In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Check out our firstJamboard to find out how previous dreaming sessions have gone and to learn what questions we will reflect on next. Theybegin with an access check in and include time to reflect on/respond to various questions that support your own imaginings and keep us grounded in community needs. November 1, 2018. Anarchist publishing and distribution since 1990. Care Work: Dreaming Disability Justice doesn't strike me as a collection of essays, a 101 workbook for aspiring allies, and definitely not a memoir but a dream. People also read lists articles that other readers of this article have read. With all of our crazy, adaptive-deviced, loving kinship and commitment to each other, we will leave no one behind as we roll, limp, stim, sign, and move in a million ways towards co-creating the decolonial living future. . COMMITMENT TO CROSS-DISABILITY SOLIDARITY We honor the insights and participation of all of our community members, knowing that isolation undermines collective liberation. Fantastic read. Ableism, again, insists on either the supercrip (able to keep up with able-bodied club spaces, meetings, and jobs with little or no access needs) or the pathetic cripple. Care Work, an impeccably written and edited collection, does just that. "This is where access intimacy gets real!" I yelled, and we all laughed. Great on audio and extremely powerful. In this paradigm, its the person offering cares job to figure out and keep figuring out what kind of care and support they can offer. SUSTAINABILITY We pace ourselves, individually and collectively, to be sustained long term. I am dreaming like my life depends on it. At the same time, this disability activist community is all I have, and the care gone into this means a lot. But I am dreaming the biggest dream of my life dreaming not just a revolutionary movement in which we are not abandoned but of a movement in which we lead the way. It is more than just having a ramp or getting disabled folks/crips into the meeting. We use cookies to improve your website experience. A gift, as Leah does. Putting words to the overlap between ableism and misogyny was refreshing and cathartic to read. 4.5 stars rounded up. "Care Work is a necessary intervention for those in queer/trans people-of-color spaces and white disability spaces alike, but more importantly, it's an offering of love to all of us living at multiple margins, between spaces of recognition and erasure, who desperately need what Leah has to say. So much packed into this book! So much incredible food for thought on community care. ISBN. 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